My reading list
Multidisciplinary team care for people with RA
Sørensen, J., Primdahl, J., Horn, H. et al (2015) Shared care or nurse consultations as an alternative to rheumatologist follow-up for rheumatoid arthritis (RA) outpatients with stable low disease-activity RA: cost-effectiveness based on a 2-year randomized trial. Scandinavian journal of rheumatology, 44(1), 13-21.
Primdahl, J., Clausen, J. & Horslev-Petersen, K. Results from systematic screening for cardiovascular risk in outpatients with rheumatoid arthritis in accordance with the EULAR recommendations. Ann. Rheum. Dis. 72, 1771-1776, doi:10.1136/annrheumdis-2013-203682 (2013). Available online
Primdahl, J., Sorensen, J., Horn, H.C., et al (2014) Shared care or nursing consultations as an alternative to rheumatologist follow-up for rheumatoid arthritis outpatients with low disease activity--patient outcomes from a 2-year, randomised controlled trial. Ann Rheum Dis, 73(2), 357-64. doi:10.1136/annrheumdis-2012-202695. Available online.
Larsson, I., Fridlund, B., Arvidsson, B., et al (2015) A nurse-led rheumatology clinic versus rheumatologist-led clinic in monitoring of patients with chronic inflammatory arthritis undergoing biological therapy: a cost comparison study in a randomised controlled trial. BMC Musculoskelet Disord, 16(1), 354.
Larsson, I., Fridlund, B., Arvidsson, B., Teleman, A. & Bergman, S. (2014) Randomized controlled trial of a nurse-led rheumatology clinic for monitoring biological therapy. J Adv Nurs, 70(1), 164-75. doi:10.1111/jan.12183. Available online.
Grønning, K., Rannestad, T., Skomsvoll, J.F., Rygg, L.Ø. & Steinsbekk, A. (2013) Long‐term effects of a nurse‐led group and individual patient education programme for patients with chronic inflammatory polyarthritis–a randomised controlled trial. Journal of Clinical Nursing. doi: 10.1111/jocn.12353. Available online.
Koksvik, H. S., Hagen, K. B., Rødevand, E., Mowinckel, P., Kvien, T. K., & Zangi, H. A. (2013). Patient satisfaction with nursing consultations in a rheumatology outpatient clinic: a 21-month randomised controlled trial in patients with inflammatory arthritides. Annals of the rheumatic diseases. doi:10.1136/annrheumdis-2012-202296. Available online.
van Eijk-Hustings Y, van Tubergen A, Boström C, Braychenko E, Buss B, Felix J, Firth J, Hammond A, Harston B, Hernandez C, Huzjak M, Korandová J, Kukkurainen ML, Landewé R, Mezieres M, Milincovic M, Moretti A, Oliver S, Primdahl J, Scholte-Voshaar M, de la Torre-Aboki J, Waite-Jones J, Westhovens R, Zangi HA, Heiberg T, Hill J. EULAR recommendations for the role of the nurse in the management of chronic inflammatory arthritis. Annals of the rheumatic diseases 2012;71(1):13-19. Available online.
Stamm T, Hill J. Extended roles of non-physician health professionals and innovative models of care within Europe: results from a web-based survey. Musculoskeletal Care. 2011; 9(2): 93-101.
Hill J. Rheumatology nurse specialists--do we need them? Rheumatology 2007;46(3):379-381.
Arvidsson SB, Petersson A, Nilsson I, Andersson B, Arvidsson BI, Petersson IF, Fridlund B. A nurse-led rheumatology clinic's impact on empowering patients with rheumatoid arthritis: A qualitative study. Nursing & Health Sciences 2006;8(3):133-139.
Cullum N, Spilsbury K, Richardson G. Nurse led care: determining long term effects is harder than measuring short term costs. British Medical Journal 2005;330(7493):682-683.
Patient Education Research
Bishop, C. J., & Jackson, J. (2013). Motivational Interviewing: How Advanced Practice Nurses Can Impact the Rise of Chronic Diseases. The Journal for Nurse Practitioners, 9(2), 105-109. Abstract online.
Meesters J, de Boer I, van den Berg M, Fiocco M, Vliet Vlieland T (2010) Unmet information needs about the delivery of rheumatology health care services: A survey among patients with rheumatoid arthritis. Patient Education and Counseling. 85(2):299-303. Pubmed.
Colmegna, I., Bartlett, S.J., Kodhek, S. & Oyoo, O.G. (2010) Educational Needs Assessment Among Patients With Rheumatic Diseases In Kenya. Arthritis & Rheumatism, 10(Suppli10), 1336. Abstract online.
B. Hardware, E. Lacey and J. Shewan, (2004) Towards the development of a tool to assess educational needs in patients with arthritis, Clinical Effectiveness in Nursing 8:111–117.
Mäkeläinen P and Vehviläinen-Julkunen K (2009) Rheumatoid arthritis patients’ knowledge of the disease and its treatments: a descriptive study, Musculoskeletal Care 7:31–44.
Assessing cross-cultural invariance
Panayides P, Robinson C & Tymms P (2010): The assessment revolution that has passed England by: Rasch measurement. British Educational Research Journal 36(4)611-626.
Tennant A, Conaghan P. (2007) The Rasch Measurement Model in Rheumatology: What is it and why use it? When should it be applied, and what should one look for in a Rasch paper. Arthritis & Rheumatism 57(8):1358-1362. Pubmed.
Brodersen, J., Meads, D., Kreiner, S., Thorsen, H., Doward, L. & McKenna, S. (2007) Methodological aspects of differential item functioning in the Rasch model. Journal of Medical Economics, 10(3), 309-324.
King, G., Murray, C.J., Salomon, J.A. & Tandon, A. (2004) Enhancing the validity and cross-cultural comparability of measurement in survey research. American Political Science Review, 98(1), 191-207. Available online.
Petersen, M.A., Groenvold, M., Bjorner, J.B., Aaronson, N., Conroy, T., Cull, A., Fayers, P., Hjermstad, M., Sprangers, M., Sullivan, M. & Qu, E.O.R.T.C. (2003) Use of differential item functioning analysis to assess the equivalence of translations of a questionnaire. Quality of Life Research, 12(4), 373-385.
Johnson T. (1998) Approaches to equivalence in cross-cultural and cross-national survey research. ZUMA Nachrichten Spezial. 3:1-40. Available online.
Saris W. (1998)The effects of measurement error in cross-cultural research. ZUMA Nachrichten Spezial. 3:67-83. Available online.
Meta-analysis
Neyeloff, J. L., Fuchs, S. C., & Moreira, L. B. (2012). Meta-analyses and Forest plots using a Microsoft Excel spreadsheet: step-by-step guide focusing on descriptive data analysis. BMC Research Notes, 5(1), 52. Full text - open access.
Friedrich, J. O., Adhikari, N. K., & Beyene, J. (2012). Ratio of geometric means to analyze continuous outcomes in meta‐analysis: comparison to mean differences and ratio of arithmetic means using empiric data and simulation. Statistics in Medicine, 31(17), 1857-1886. Full text online.
Hu P, Greenwood CMT, Beyene J (2009) Using the ratio of means as the effect size measure in combining results of microarray experiments. BMC Systems Biology. 3:106. Full text - open access.
Higgins, J., White, I. R., & Anzures‐Cabrera, J. (2008). Meta‐analysis of skewed data: Combining results reported on log‐transformed or raw scales. Statistics in Medicine, 27(29), 6072-6092. Full text - open access.
Friedrich JO, Adhikari NKJ, Beyene J (2008) The ratio of means method as an alternative to mean differences for analysing continuous outcome variables in meta-analysis: A simulation study. BMC Research Methods. 8:32. Full text - open access.
Interpreting non-significant results
Altman, D.G., Bland, J.M. (1995) Statistics notes: Absence of evidence is not evidence of absence. British Medical Journal. 311(7003): 485. Available online
Boutron, I., Dutton, S., Ravaud, P., Altman, D.G. (2010) Reporting and Interpretation of Randomized Controlled Trials With Statistically Nonsignificant Results for Primary Outcomes. The Journal of the American Medical Association. 303 (20): 2058-2064. Available online
Motulsky, H (1995) Interpreting a Result That Is Not Statistically Significant In, Intuitive Biostatistics. Oxford: Oxford University Press. pp. 141-145. Contents online
Dealing with missing data
Groenwold RHH, Donders ART, Roes KCB, Harrell FE, Moons KGM (2012) Dealing With Missing Outcome Data in Randomized Trials and Observational Studies. American Journal of Epidemiology. 175(3): 210-217
White IR, Horton NJ, Carpenter J (2011) Strategy for intention to treat analysis in randomised trials with missing outcome data. British Medical Journal. 342: 910-912
Economic evaluations
Nixon, J., K. S. Khan, et al. (2001). "Summarising economic evaluations in systematic reviews: a new approach." British Medical Journal 322(7302): 1596-1598.
Managing RA
Smolen JS, Aletaha D, Bijlsma JWJ, Breedveld FC, Boumpas D, Burmester G, Combe B, Cutolo M, de Wit M, Dougados M. Treating rheumatoid arthritis to target: recommendations of an international task force. Annals of the Rheumatic Diseases 2010;69(4):631-637.
Deighton C, O’Mahony R, Tosh J, Turner C, Rudolf M. Guidelines: Management of rheumatoid arthritis: summary of NICE guidance. British Medical Journal 2009;338:b702.
Combe B, Landewé R, Lukas C, Bolosiu HD, Breedveld F, Dougados M, Emery P, Ferraccioli G, Hazes J, Klareskog L. EULAR recommendations for the management of early arthritis: report of a task force of the European Standing Committee for International Clinical Studies Including Therapeutics (ESCISIT). Annals of the Rheumatic Diseases 2007;66(1):34-45.
Luqmani R, Hennell S, Estrach C, Birrell F, Bosworth A, Davenport G, et al. British Society for Rheumatology and British Health Professionals in Rheumatology guideline for the management of rheumatoid arthritis (the first two years). Rheumatology. 2006; 45(9): 1167-9.
Modelling
Musenge E. Rheumatoid Arthritis disease progression in a South African cohort: Multistate chronic dynamic disease modelling. SACEMA Quarterly ePub date 12 June 2013. Free Access
Sørensen, J., Primdahl, J., Horn, H. et al (2015) Shared care or nurse consultations as an alternative to rheumatologist follow-up for rheumatoid arthritis (RA) outpatients with stable low disease-activity RA: cost-effectiveness based on a 2-year randomized trial. Scandinavian journal of rheumatology, 44(1), 13-21.
Primdahl, J., Clausen, J. & Horslev-Petersen, K. Results from systematic screening for cardiovascular risk in outpatients with rheumatoid arthritis in accordance with the EULAR recommendations. Ann. Rheum. Dis. 72, 1771-1776, doi:10.1136/annrheumdis-2013-203682 (2013). Available online
Primdahl, J., Sorensen, J., Horn, H.C., et al (2014) Shared care or nursing consultations as an alternative to rheumatologist follow-up for rheumatoid arthritis outpatients with low disease activity--patient outcomes from a 2-year, randomised controlled trial. Ann Rheum Dis, 73(2), 357-64. doi:10.1136/annrheumdis-2012-202695. Available online.
Larsson, I., Fridlund, B., Arvidsson, B., et al (2015) A nurse-led rheumatology clinic versus rheumatologist-led clinic in monitoring of patients with chronic inflammatory arthritis undergoing biological therapy: a cost comparison study in a randomised controlled trial. BMC Musculoskelet Disord, 16(1), 354.
Larsson, I., Fridlund, B., Arvidsson, B., Teleman, A. & Bergman, S. (2014) Randomized controlled trial of a nurse-led rheumatology clinic for monitoring biological therapy. J Adv Nurs, 70(1), 164-75. doi:10.1111/jan.12183. Available online.
Grønning, K., Rannestad, T., Skomsvoll, J.F., Rygg, L.Ø. & Steinsbekk, A. (2013) Long‐term effects of a nurse‐led group and individual patient education programme for patients with chronic inflammatory polyarthritis–a randomised controlled trial. Journal of Clinical Nursing. doi: 10.1111/jocn.12353. Available online.
Koksvik, H. S., Hagen, K. B., Rødevand, E., Mowinckel, P., Kvien, T. K., & Zangi, H. A. (2013). Patient satisfaction with nursing consultations in a rheumatology outpatient clinic: a 21-month randomised controlled trial in patients with inflammatory arthritides. Annals of the rheumatic diseases. doi:10.1136/annrheumdis-2012-202296. Available online.
van Eijk-Hustings Y, van Tubergen A, Boström C, Braychenko E, Buss B, Felix J, Firth J, Hammond A, Harston B, Hernandez C, Huzjak M, Korandová J, Kukkurainen ML, Landewé R, Mezieres M, Milincovic M, Moretti A, Oliver S, Primdahl J, Scholte-Voshaar M, de la Torre-Aboki J, Waite-Jones J, Westhovens R, Zangi HA, Heiberg T, Hill J. EULAR recommendations for the role of the nurse in the management of chronic inflammatory arthritis. Annals of the rheumatic diseases 2012;71(1):13-19. Available online.
Stamm T, Hill J. Extended roles of non-physician health professionals and innovative models of care within Europe: results from a web-based survey. Musculoskeletal Care. 2011; 9(2): 93-101.
Hill J. Rheumatology nurse specialists--do we need them? Rheumatology 2007;46(3):379-381.
Arvidsson SB, Petersson A, Nilsson I, Andersson B, Arvidsson BI, Petersson IF, Fridlund B. A nurse-led rheumatology clinic's impact on empowering patients with rheumatoid arthritis: A qualitative study. Nursing & Health Sciences 2006;8(3):133-139.
Cullum N, Spilsbury K, Richardson G. Nurse led care: determining long term effects is harder than measuring short term costs. British Medical Journal 2005;330(7493):682-683.
Patient Education Research
Bishop, C. J., & Jackson, J. (2013). Motivational Interviewing: How Advanced Practice Nurses Can Impact the Rise of Chronic Diseases. The Journal for Nurse Practitioners, 9(2), 105-109. Abstract online.
Meesters J, de Boer I, van den Berg M, Fiocco M, Vliet Vlieland T (2010) Unmet information needs about the delivery of rheumatology health care services: A survey among patients with rheumatoid arthritis. Patient Education and Counseling. 85(2):299-303. Pubmed.
Colmegna, I., Bartlett, S.J., Kodhek, S. & Oyoo, O.G. (2010) Educational Needs Assessment Among Patients With Rheumatic Diseases In Kenya. Arthritis & Rheumatism, 10(Suppli10), 1336. Abstract online.
B. Hardware, E. Lacey and J. Shewan, (2004) Towards the development of a tool to assess educational needs in patients with arthritis, Clinical Effectiveness in Nursing 8:111–117.
Mäkeläinen P and Vehviläinen-Julkunen K (2009) Rheumatoid arthritis patients’ knowledge of the disease and its treatments: a descriptive study, Musculoskeletal Care 7:31–44.
Assessing cross-cultural invariance
Panayides P, Robinson C & Tymms P (2010): The assessment revolution that has passed England by: Rasch measurement. British Educational Research Journal 36(4)611-626.
Tennant A, Conaghan P. (2007) The Rasch Measurement Model in Rheumatology: What is it and why use it? When should it be applied, and what should one look for in a Rasch paper. Arthritis & Rheumatism 57(8):1358-1362. Pubmed.
Brodersen, J., Meads, D., Kreiner, S., Thorsen, H., Doward, L. & McKenna, S. (2007) Methodological aspects of differential item functioning in the Rasch model. Journal of Medical Economics, 10(3), 309-324.
King, G., Murray, C.J., Salomon, J.A. & Tandon, A. (2004) Enhancing the validity and cross-cultural comparability of measurement in survey research. American Political Science Review, 98(1), 191-207. Available online.
Petersen, M.A., Groenvold, M., Bjorner, J.B., Aaronson, N., Conroy, T., Cull, A., Fayers, P., Hjermstad, M., Sprangers, M., Sullivan, M. & Qu, E.O.R.T.C. (2003) Use of differential item functioning analysis to assess the equivalence of translations of a questionnaire. Quality of Life Research, 12(4), 373-385.
Johnson T. (1998) Approaches to equivalence in cross-cultural and cross-national survey research. ZUMA Nachrichten Spezial. 3:1-40. Available online.
Saris W. (1998)The effects of measurement error in cross-cultural research. ZUMA Nachrichten Spezial. 3:67-83. Available online.
Meta-analysis
Neyeloff, J. L., Fuchs, S. C., & Moreira, L. B. (2012). Meta-analyses and Forest plots using a Microsoft Excel spreadsheet: step-by-step guide focusing on descriptive data analysis. BMC Research Notes, 5(1), 52. Full text - open access.
Friedrich, J. O., Adhikari, N. K., & Beyene, J. (2012). Ratio of geometric means to analyze continuous outcomes in meta‐analysis: comparison to mean differences and ratio of arithmetic means using empiric data and simulation. Statistics in Medicine, 31(17), 1857-1886. Full text online.
Hu P, Greenwood CMT, Beyene J (2009) Using the ratio of means as the effect size measure in combining results of microarray experiments. BMC Systems Biology. 3:106. Full text - open access.
Higgins, J., White, I. R., & Anzures‐Cabrera, J. (2008). Meta‐analysis of skewed data: Combining results reported on log‐transformed or raw scales. Statistics in Medicine, 27(29), 6072-6092. Full text - open access.
Friedrich JO, Adhikari NKJ, Beyene J (2008) The ratio of means method as an alternative to mean differences for analysing continuous outcome variables in meta-analysis: A simulation study. BMC Research Methods. 8:32. Full text - open access.
Interpreting non-significant results
Altman, D.G., Bland, J.M. (1995) Statistics notes: Absence of evidence is not evidence of absence. British Medical Journal. 311(7003): 485. Available online
Boutron, I., Dutton, S., Ravaud, P., Altman, D.G. (2010) Reporting and Interpretation of Randomized Controlled Trials With Statistically Nonsignificant Results for Primary Outcomes. The Journal of the American Medical Association. 303 (20): 2058-2064. Available online
Motulsky, H (1995) Interpreting a Result That Is Not Statistically Significant In, Intuitive Biostatistics. Oxford: Oxford University Press. pp. 141-145. Contents online
Dealing with missing data
Groenwold RHH, Donders ART, Roes KCB, Harrell FE, Moons KGM (2012) Dealing With Missing Outcome Data in Randomized Trials and Observational Studies. American Journal of Epidemiology. 175(3): 210-217
White IR, Horton NJ, Carpenter J (2011) Strategy for intention to treat analysis in randomised trials with missing outcome data. British Medical Journal. 342: 910-912
Economic evaluations
Nixon, J., K. S. Khan, et al. (2001). "Summarising economic evaluations in systematic reviews: a new approach." British Medical Journal 322(7302): 1596-1598.
Managing RA
Smolen JS, Aletaha D, Bijlsma JWJ, Breedveld FC, Boumpas D, Burmester G, Combe B, Cutolo M, de Wit M, Dougados M. Treating rheumatoid arthritis to target: recommendations of an international task force. Annals of the Rheumatic Diseases 2010;69(4):631-637.
Deighton C, O’Mahony R, Tosh J, Turner C, Rudolf M. Guidelines: Management of rheumatoid arthritis: summary of NICE guidance. British Medical Journal 2009;338:b702.
Combe B, Landewé R, Lukas C, Bolosiu HD, Breedveld F, Dougados M, Emery P, Ferraccioli G, Hazes J, Klareskog L. EULAR recommendations for the management of early arthritis: report of a task force of the European Standing Committee for International Clinical Studies Including Therapeutics (ESCISIT). Annals of the Rheumatic Diseases 2007;66(1):34-45.
Luqmani R, Hennell S, Estrach C, Birrell F, Bosworth A, Davenport G, et al. British Society for Rheumatology and British Health Professionals in Rheumatology guideline for the management of rheumatoid arthritis (the first two years). Rheumatology. 2006; 45(9): 1167-9.
Modelling
Musenge E. Rheumatoid Arthritis disease progression in a South African cohort: Multistate chronic dynamic disease modelling. SACEMA Quarterly ePub date 12 June 2013. Free Access